Family Update 2019

Haven’t updated in awhile. Let’s start with MB1. Tyler just turned 28 last week. Isn’t that fucking incredible? Having a bit of trouble defining himself. He’s suffering in a big brother can’t do a fucking thing for little brother kind of way. He gave therapy all of about 2 minutes before he nixed it. His long term girlfriend R is still here. Think it’s been about 6 years for them. I don’t know what he’s waiting for. I told him to piss or get off the pot and give someone else a shot. He pretty much ignores me when I bring it up. He doesn’t treat her right either. She should probably keep searching for that soul mate. I don’t want him to waste her life waiting for him. They have lived together for 3 years. Just don’t understand.

MB2/ Zach is 26. I know. He’s married to Lexy and they have kitties. Not sure about the kids yet, but that’s fine. They should enjoy being young. He works in graphic design, and she’s a tax gal. They are gearing up to buy their first house. I don’t have to worry about Zach. He’s doing just fine.

MB3/Austin? Still a hellion. Only now he’s 23 and a Marine. All KINDS Of crazy. Still sweet though. Would do anything for anyone. No girlfriend these days. He’s enjoying himself. I hope he’s being smart about it.

MB4/ Carson – is going to be ….20. Unreal. He’s incredible. Jay calls him the perfect human. He is compassionate, friendly, outgoing, confident, kind – you get the picture. I haven’t seen him get angry since he was 5. ANd even then it was because he couldn’t understand what I was saying. He has a steady girlfriend, they’ve been together about 5-6 months. I have a feeling she’s sticking around. They got promise rings last week.He pretty much lives with her. He only comes home to watch Ian for us for bowling league, and to wash clothes. I’m glad he’s happy. He works a full time job – worked his way from a waiter (first job ever), to the manager spot. Did I mention he’s also a sophomore in college? Engineering. Mind blowing. I didn’t know if he’s ever be able to move out. ANd now look. We even had the talk about the condoms – to which he said – it’s ok, if I’m old enough to do it, I’m old enough to protect myself. Just a very mature young man.

Savanna. Baby girl is 17. Makes you want to hurl, eh? She’s awesome. Very smart, very kind, very down to Earth. She’s very outspoken for things she believes in. She’s a junior in high school. No boyfriend, although her best friend is a guy, and I soooooooooo wish they would see how perfect they are for each other. Not my call. Dammit. She’s beautiful. Prom is coming up, and she said I can do her hair and makeup – which she doesn’t do — at all. She is a no frills gal. Take it or leave it. Very spirited. Did I mention smart?

Ian is 15 years old. That statement is so very odd. Wasn’t he just 8? I try to enjoy every day. Every drop of the day. Trying to bank the memories? Damn. That kind of sounded morbid. I’m not erasing it, because I rarely erase, but damn, doesn’t that sound yucky? Duchenne has become a part of our lives. He’s up to two heart meds, 3 albuterols, zyrtec, singulair, flonase, 4 tums, 2 d3s, prednisone. It’s a shot of that wet shit in the nose, 8 pills, one breathing treatment, 3 rounds of cough assists per day just to keep it clear, 4 tums and a singulair to chew. And he’s healthy. Incredible times await us, I’m sure.

Anyway, back to my boy. My wickedly smart boy who will best you at trivia, rest assured. Especially music or cars or war or weapons or games. He’s a fucking master. No lie, he’s got a bad case of that there ADHD , and he just fucking pours that information in to his head. He has an xbox, a google home, smart phone, and an ipad. I figure he can pretty much find anything he wants uses one of those gadgets. He is losing the battle with his left arm/hand. They simply don’t want to work anymore. “Too heavy to lift.” Fuck you Duchenne. So, he has partial mobility in his right arm/hand. That’s how he feeds himself. And his remote for his games are set up a special way he can play thanks to his big brothers for ordering those specialty ones.

He got pneumonia twice in a month a few months back. Had to be hospitalized the second time to rehydrate. Said he was getting it due to aspiration. So, he has to have a swallow test. And a gtube inserted because he lost 5 lbs and weight is of the UTMOST priority when it comes to their odds at fighting this bastard disease. He also probably needs the spinal rods. I don’t like it either, but he can’t keep getting sick like that. Scary shit. My heart just can’t take seeing him like that.

Anyfucking way —

Jay is Jay. No, I take that back. He is SuperJay. He cleans, he cooks, he handles doc appts now, he handles the money, he handles the schools and the lunch money and the dental exams and vision and Ian’s well checks and he stays up every night to make sure I leave safely. He start my car 10 before I leave, and watches it out the window so no one gets in it. He has shoveled snow three times at 1am for me the past 6 weeks. I heart him. He is the business sales account guy for the cable company. He works very hard to bring home that bacon. And I luuuuurve me some bacon.

Me? Graduated from the local university a year ago. I got a job at the PO a few months after graduation, and have been here ever since. Totally not my field (psychology and computers) , but that was only for my benefit anyway. I make good money, I like my job, and i love who I work with. Can’t beat that with a stick.

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