I can’t wait. Next week Jay and I will be on a plane headed to Las Vegas. My husband of almost 30 years. Happier than I’ve ever been. Trying not to wait on the other shoe to fall. Trying to enjoy life as it comes. Trying to get through the day without crying about my son. Some days that’s harder than others.
He’s asking about his future. Wanting to know if he’ll be able to drive, date, marry… I tell him of course it’s possible. I tell myself to believe that anything is possible. I want to believe that he’ll defy the odds, but it’s hard to battle this monster – Duchenne has never lost a battle. Never. No cures, no real treatment. Just a progression into hell.
ANyway, this was supposed to be a happy post. We’ve never been on a honeymoon. We went to FL last year for his sister’s wedding, but he was sick the entire time. Every other vacation, I was sick. Throw us some – let no bad happen – vibes. Planes make me hurl. Please plane driver, don’t scare the shit out of me.