I never was any good at titles …

~ I A N ~ had his semi annual appt Monday. Basically, his spine is shit and needs rods. His heart is ‘nothing to worry about’ , yet she ups the doses and orders a third heart pill. And a heart monitor. And they stamp – sudden heart failure risk – on his chart. yeah, it’s fine.

They won’t wait until he has left the room before they start talking about serious stuff. His care, they say. He’s almost 16. Yeah, I know, but my boy is sensitive. He was having trouble yesterday about the spinal rods thing, and we talked and he felt better. Now we have to tell him that the test results show major scoliosis, and he needs the spinal fusion surgery. He will no longer be able to feed himself. Or write. Or or or. I hope he can still play video games. That will be a sad fucking day in this house.

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